This morning we had a physio appointment for Noah. A couple of weeks ago we caught up with Noah's physio who did a biomechanical assessment of him. She usually does one or two a year to just see how well he is, or isn't moving, and then shows us different things to do to help loosen him up or stretch different muscles.
It is really interesting watching how she literally measures things, such as the angle that he can get his hamstring etc stretched to.
The boys always love coming to St Giles. Harri always asks if we are going in the 'big room' as the gym area is a lot of fun, especially if there aren't any other clients around and they are allowed to have a play. If we have to go to the Seating Clinic that isn't as much fun, as we are usually just sitting and waiting for Noah's wheelchair to be adjusted.
Today our appointment was to show us some different ways to give Noah's muscles on his chest a stretch, as they are getting quite tight and short. His physio - Kerryn is great and has a lot of experience. The main problem that we are dealing with at the moment is that Noah has scoliosis (a curve and rotation in the spine) which is becoming severe. Many kids like Noah end up having to have spinal surgery to place rods etc in their spine to straighten it up as much as possible, as their internal organs become crushed as their curve gets worse. I hate to think that we may have to do that one day, but it is definitely looking like it may be an option for Noah in the future as he is getting worse, very quickly. We have different things that we do to slow the curve down, but there is nothing we can do to stop it. Hopefully we won't have to worry about having an operation on it for a very long time.