It's usually because he has cerebral irritation or so we think. It is so hard to know, but after ten years we just know that he goes through these periods, and then after weeks and weeks of med changes, and lots of yelling he settles down again. We first of all have to rule out everything else - whether he could be constipated, does he have a UTI (urinary tract infection), sore throat, ear infection or a broken bone. Once we have ruled out everything else, then we usually put it down to him having cerebral irritation and assume he just has a major headache.
When he's like this he also has an increase in seizures. He has seizures every single day, but when he is like this he usually has a lot more - up to 30 or more a day, and then even in his sleep he seems to be in a constant state of seizure activity. On the upside we are lucky now because we actually have something to help him settle down. Before we would give Panadol but it was just like giving him water, and it did nothing to help. Since he had his first broken leg a couple of years ago, we now have stronger pain killers which we can give at any time.
The past couple of weeks Noah has been cranky on and off. He seems to have a really bad day and then the next day he is totally fine again, or he may have two good days and then a cranky one. On Sunday morning around 3.15 am I woke up as I heard Noah wake (he sleeps in our bedroom). His breathing always changes when he starts to wake, which wakes me up. I'm used to him waking in the night and it's usually my cue to go to the loo :) I went to the toilet, and then went to check on him and noticed he had a very strained look on his face, and his arms were very tense. He doesn't usually cry in the night, but then he just started screaming down the house. I knew there was no way he would settle quickly, so we shut all the boys doors so they didn't also wake and ended up bringing him into our bed with us.
He literally hasn't slept in our bed for maybe 5 years or more. It was a lot different this time round as he isn't so easy to just cuddle and rock because he is just so big now. It took him over an hour to go back to sleep.
Aaron got him up this morning, so I could get him ready for school and within a minute he started yelling again. This went on for a couple of hours.
He's now peacefully sleeping and hopefully when he wakes up he will be more settled for the rest of the day. We have rung his paediatrician Dr B. and we will be seeing him again tomorrow, even though we just saw him a week ago. We changed his meds last week, but he obviously needs another change and hopefully it won't be much longer before we find something that works and he is back to being settled all the time again.