This year I was asked again to go and talk to the Child Studies class at Kings Meadows High about Noah. This is the third or fourth year in a row and the poor teacher is probably getting so sick of the same talk, but she said it's always interesting to hear how things have changed for Noah and to see how much he has grown (which is a LOT this year!).
The students are always really interested and seem very overwhelmed with all the information, but always ask really good questions. This year one of the girls asked me why was Noah still alive and almost 9, when the Drs told us he would only live for 2-4 years. I told her I didn't really know, but I think a lot of it has to do with the care that we give him. I think being proactive with the Drs and therapists and finding alternative therapies also really helps.
Noah wasn't feeling very happy when we were there, so he has his uncomfortable face on.