The Kings

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Friends with Hydran

Brandon and Amber
Barb
Ben Orton
Brayden
Brayden's Journey
Breanna
Caleb Moody
Chrissy
Cobyn
Haydin
Heather Joy
Holly
Hydranencephaly Foundation - Journey of the Bees
Junior
Junior's Voice
Kayda
Kirsten
Leo
Natan Shai
Pauli
Sean

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Photo by Fiona Harding

Who is joining me in Sydney on 3rd August?

Who is joining me in Sydney on 3rd August?

About Us

My Photo
The Kings
Tasmania, Australia
Aaron and I were married in 1995 and we have four boys - Jalen (13), Harrison (8), Kobe (4) and Noah passed away three months after his tenth birthday on the 8th October, 2011. Aaron passed away suddenly from a heart condition on 26th January, 2012, just three months after Noah passed away. He was my eternal companion and best friend. Noah was born with a condition called hydranencephaly, which meant he was missing most of his cortex (brain). We were told he wouldn't be with us past his fourth birthday. We were blessed with an extra six years with him. Because of his condition he was severely mentally and physically disabled and had a lot of struggles in life. Noah taught us so much - mainly what is important in life - our family and spending quality time together. We didn't count the days that we had together, but made the days count. Together my three boys and I are now trying to continue on our life on earth without Noah and Aaron in the best way that we can, until we are reunited with them again.
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Photo by Alana Aston Photography

Photo by Alana Aston Photography

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Past Posts

  • ►  2013 (71)
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  • ▼  2011 (273)
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      • Looking but not feeling like Christmas
      • My Landscaper
      • Balloons for Noah
      • Naughty or Nice
      • Going Back
      • Heaven's Bank Note
      • Smiling Boys
      • 16 years
      • Where Noah Is
      • Family and Friends
      • An Honour and a Privilege
      • Monkeys for our Monkey
      • Moving On
      • Happy Harri
      • It was 'a fantastic show'
      • The fog had lifted
      • The Show Must Go On
      • The piece of the puzzle that made our school compl...
      • Scared and Sad
      • Napping
      • Our 'new' bedroom
      • Hard to have them here
      • The 8th
      • Labour of Love
      • Heart Attack
      • 4 weeks ago...
      • Love and Support
      • It's not a tragedy
      • 'I'm Santa Claus"
      • NOAHvember
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Popular Posts

  • And then there were four
    We are home from our holiday down at St Helens early unfortunately because my heart is breaking as Aaron passed away after 9 pm last night. ...
  • Saying Goodbye
    As the last week went on we knew Noah wasn't able to fight any longer.  He had up and down days and on Thursday the doctors actually sp...
  • Noah is my hero (Aaron's funeral talk)
    You’ve heard from the three strong members of the family and now you will hear from the blubbering mess, which is me.  Today is really not...
  • Our Last Days Together
    One thing I'm so grateful for is that our last days with Aaron were very happy and fun ones.  We were on our annual family holiday and ...
  • All over again
    Where to start. So many people. So much love shown to us today. It was a hard, but amazing day today as we said farewell to Aaron. I knew ...
  • Noah's gift to us
    Looking back on last week I now see so clearly what was happening, but at the time I just hoped and prayed that Noah was going to surprise u...
  • Is it real?
    I know it really happened, but how can it be real? This is how I imagine us right now - together with you right by my side helping me ...

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